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Janet Kuperstein

response to: looking for help

comments: True, don't give up.  

After my fourth child was born, my immune system went haywire.  I eventually ended up with an environmental allergist.  Immune system reactions can mimic
all sorts of medical conditions.  I was reactive to every food tested (21) and most chemicals.  I had digestive and nervous system symptoms including
depression, confusion, slurred speech, inner ear imbalance, sobbing episodes, instant sore throat, and intestinal swelling. As you say, it is helpful to
know "I'm not crazy" when they provoked a crying jag in the clinic with histimine. 

The desensitization allowed me to eat most foods again but there are still some foods I must be carefull with, especially peanuts.   Most of the chemical
reactions are under control but I still had a perfume reaction that was a major interference in my life.  I could not go to women's meetings and had to
leave church frequently because other people seem to think that perfume needs to be a part of their life.  

Usually I avoid medication for fear of reacting to it but last year I found an over the counter histamine blocker that worked for the perfume reaction.
So, after 16 years I can be with people again!

My sister-in-law is an occupational therapist.  She has fibromyalgia and says it is difficult to get enough exercise without getting too much.